Federal Judge Alejandro Sánchez Freytes rejected the protection so that the child Benjamin Bustos Fierro8 years old, be bone marrow transplant in the United States and ordered the prepaid medicine company osde to arbitrate the necessary means to carry out the intervention in Argentina without delays or delays.
The child’s parents had filed said appeal, arguing that for the treatment to be successful it must be carried out abroad and they requested “100% coverage of hematopoietic cell transplantation at the University of Minnesota Health Fairview Center for Pediatric Bone Marrow and Transplantation”in charge of Osde and the National State.
Meanwhile Carlos Nayi, lawyer representing the Bustos Fierro family stated in the legal document that “The best option for Benjamin is for him to be transplanted in Minnesota, United States, where there is a hospital with a lot of experience, specialization, and technology”.
However, Federal Court 2 of Córdoba ordered Osde to “arbitrate the necessary means so that the transplant is carried out in the shortest possible time, supervising that there are no delays in authorizations or in the lack of actions”in case the child’s parents decide to perform the procedure in Argentina.
As happened with his brothers in 2011, Benjamin began to present symptoms of Adrenoleukodystrophy (ADL). The two eldest children underwent bone marrow transplants in the United States more than 10 years ago. Currently performing the procedure in that country costs 800 thousand dollars. Neurodegenerative disease and therefore the urgency of the intervention.
After the negative ruling, the family decided to appeal. “All the boys transplanted in Argentita for Adrenoleukodystrophy (ADL) have died. Joaquín and Agustín have been transplanted for 12 years and now we are going for Benjamin. Unfortunately the disease is activated and we do not have time. We hope that through this appeal the court understands that the only alternative of life is there”indicated Javier father of Benjamin.
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