April 17 is World Hemophilia Day, a date that seeks to raise awareness and remember the importance of maintaining adequate treatment and accessing information through the province’s Comprehensive Care Program.
Within the framework of this anniversary, from April 13 to today, public buildings and the Legislature are illuminated in red. The Mario Alberto Kempes stadium will also do so this Sunday.
📆 World Hemophilia Day seeks to inform and raise awareness of this condition. pic.twitter.com/nyYhmNbR56
– Ministry of Health of Córdoba (@minsaludcba) April 17, 2022
what is hemophilia
Hemophilia is a disease that is caused by a mutation of the genes on the X chromosome, and is characterized by the decrease or absence of the function of the factors necessary for coagulation. The two most common types are: hemophilia A, which is caused by the absence of factor VIII in the blood; and B, due to the lack of factor IX.
Men with hemophilia pass the mutated gene on to their female daughters, but not to their sons. Female carriers of hemophilia can pass it on to both children. Cases of sporadic hemophilia can also occur, without a family history, but these are the rarest cases.
Today April 17th we commemorate World Hemophilia Day, with the aim of educating about this blood disorder.
— Blooders (@somosblooders) April 17, 2022
how it manifests
People with this condition may experience uncontrolled bleeding as a result of a seemingly minor injury. In joints and muscles they cause pain and often lead to serious disabilities; while in main organs they can have lethal consequences.
For many years it was considered that only men could present the symptoms and that women only carried the gene. There is now evidence that many carriers experience symptoms. These manifest themselves, mainly, with abundant flow and greater intensity of pain during menstrual cycles.
In pregnancy, most carriers do not have bleeding complications. However, it is important to consult with a hematology referent, to accompany the obstetrician in the care.
Diagnosis, prevention and treatment
The Comprehensive Care Program for People with Hemophilia has its place of reference in the Córdoba Hospital. This is the one in charge in the provincial health system of receiving consultations and providing treatment.
It should be noted that by having an interdisciplinary approach, it also works together with the Children’s Hospital, the Córdoba Hemophilia Foundation Branch and the Traumatology area of the Cáceres de Allende Transit Hospital.
The diagnosis is free and is carried out through a blood sample that measures the percentage of coagulation factors. This test is mainly indicated when other relatives have this condition.
It is important to point out that people living with hemophilia must maintain a healthy life and sustain the treatment that professionals indicate. It is also recommended to report your situation to health professionals, teachers, physical trainers, and those who consider it necessary.
Comprehensive Care Program for People with Hemophilia – Hospital Córdoba
- Address: Libertad 2051, 3 floor – Córdoba
- Phone: 0351 – 4529074. Cell: 0351 – 156456813
- E-mail: [email protected]
Children’s Hospital also offers special care for this condition.
- Address: Bajada Pucará 1900 – Córdoba
- Tel: 0800 – 555 – 4141